National Notifiable Diseases Surveillance System (NNDSS)

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Summary

The National Notifiable Diseases Surveillance System (NNDSS) collects case surveillance data from across the U.S. to keep people healthy. CDC monitors about 120 of these notifiable diseases and conditions at the national level. This important step helps protect the health of individual communities and the nation.

Agency HHS, CDC
Data Checkup

Historical Data Availability

No Known Issue

Future Data Availability

No Known Issue

Data Quality

High Risk
In 2025, several questions in the data collection instrument were revised or removed. "Gender" was changed to "sex," all questions related to gender identity and sexual orientation were deleted, and terminology referring to "gestational parent" was replaced with "gestational mother."

Statutory Context

High Risk
Statutory authorization vague.

Staffing and Funding

No Known Issue

Policy

High Risk
In April 2025, the ICR submission reflects the removal of questions related to transgender identity and sexual orientation and changes "gender" to "sex" and "gestational parent" to "gestational mother" in response to Executive Order 14168.
Last updated: 2026-07-16

Details

OMB Control Number 0920-0728
Authorizing Statutes 42 USC 241
Related ICRs
Reference Number Title Agency Status Request Type
202401-0920-012 [OPHDST] National Notifiable Diseases Surveillance System (NNDSS) HHS/CDC Active
Revision of a currently approved collection
202504-0920-009 [OPHDST] National Notifiable Diseases Surveillance System (NNDSS) HHS/CDC Active
Revision of a currently approved collection
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