National HIV Surveillance System (NHSS)
Back to all collectionsSummary
The National HIV Surveillance System (NHSS) is the primary source of HIV data for monitoring cases of HIV infection in the United States and 6 U.S. territories and freely associated states (American Samoa, Guam, Northern Mariana Islands, Puerto Rico, Republic of Palau, U.S. Virgin Islands). The data are reported by laboratory and health care providers to state or local surveillance programs, who in turn report the data to CDC.
| Agency | HHS, CDC |
|---|---|
| Data Checkup |
Historical Data Availability
No Known Issue
Future Data Availability
No Known Issue
Data Quality
High Risk
In August 2025, the ICR submission removed questions related to gender identity and sexual behaviors from the data collection instrument. Additionally, the response options for the sex variable were changed to include only "Male" and "Female."
Statutory Context
High Risk
Statutory authorization is vague.
Staffing and Funding
No Known Issue
Policy
High Risk
The CDC NHSS website has a banner posted indicating that content may be modified or removed in the future. While the scope of any changes is uncertain, ongoing policy priorities and executive actions indicate there is potential for future changes to the data collection or its associated documentation. Additionally, in August 2025, the ICR submission removed questions related to gender identity and sexual behaviors from the data collection instrument. Additionally, the response options for the sex variable were changed to include only "Male" and "Female."
Last updated: 2026-08-13
Details
| OMB Control Number | 0920-0573 | |||
|---|---|---|---|---|
| Authorizing Statutes | 42 USC 242b, 42 USC 247b, 42 USC 247c | |||
| Related ICRs |
| Reference Number | Title | Agency | Status | Request Type |
|---|---|---|---|---|
| 202602-0920-009 | [NCHHSTP] National HIV Surveillance System (NHSS) | HHS/CDC | Received in OIRA | Extension without change of a currently approved collection |
| 202508-0920-010 | [NCHHSTP] National HIV Surveillance System (NHSS) | HHS/CDC | Active | No material or nonsubstantive change to a currently approved collection |
| 202412-0920-021 | [NCHHSTP] National HIV Surveillance System (NHSS) | HHS/CDC | Historical Active | No material or nonsubstantive change to a currently approved collection |