Change Requests

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

Low Income Home Energy Assistance Program (LIHEAP) Annual Report on Households Assisted

Key Information

Abstract

The Low Income Home Energy Assistance Program (LIHEAP) block grant (42 U.S.C. 8621) was established under Title XXVI of the Omnibus Budget Reconciliation Act of 1981, P. L. 97-35. The Office of Community Services (OCS) within the Department of Health and Human Services' (DHHS) Administration for Children and Families (ACF) administers LIHEAP at the Federal level. The LIHEAP Household Report is an annual data collection effort conducted by OCS to collect information from LIHEAP grantees to meet statutory requirements and program objectives. The LIHEAP statute requires the collection of data on the number of households assisted, their income levels, and vulnerability group, by type of LIHEAP assistance, for inclusion in the Secretary’s annual LIHEAP Report to Congress. The data are collected through the LIHEAP Household Report, which consists of the following: (1) a Long Format for state grant recipients, the District of Columbia, and select territory grant recipients, and (2) a Short Format for tribal grant recipients and select territory grant recipients. OCS has updated the report to update gender collected data to denote sex as a biological variable in current approved information collection requests to comply with recent Presidential directives.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

42 USC 8629	View Law

42 USC 8621	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

Mental Health Assessment Form, Public Health Investigation Form: Active TB, and Public Health Investigation Form: Non-TB Illness

Key Information

Abstract

The Mental Health Assessment Form was approved by OMB on September 16, 2023, as part of the Mental Health Asessment Form, Public Health Investigation Form: Active TB, and Public Health Investigation Form: Non-TB Illness Form information collection. The purpose of the Mental Health Assessment is to collect standardized health information on unaccompanied children during evaluations with mental health providers. The following two Administration for Children and Families (ACF) Office of Refugee Resettlement (ORR) information collections capture health data on children in ORR care: • Medical Assessment Form and Dental Assessment Form • Mental Health Assessment Form and Public Health Investigation Form: Active TB, and Public Health Investigation Form: Non-TB Illness. ORR has recently identified a specific need to share data collected on ORR’s health assessment forms that falls outside of the stated limitations with the Department of Homeland Security (DHS). The need to communicate with DHS occurs when a newly referred child arrives at an ORR facility ill or requires emergent/urgent healthcare services shortly after placement and ORR was not notified in advance. For DHS to investigate the event, ORR must share confidential and sensitive health information including the child’s alien number, name, signs/symptoms, diagnoses, and date of diagnosis. The goal of this data sharing effort is to identify areas of potential improvement in delivery of healthcare services and continuity of care for children transferred from DHS to HHS custody. ACF has implemented changes to update gender collected data to denote sex as a biological variable in current approved information collection requests to comply with recent presidential directives.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

6 USC 279	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

National Human Trafficking Hotline (NHTH) Performance Indicators

Key Information

Abstract

Section 107(b)(1)(B)(ii) of the Trafficking Victims Protection Act of 2000 (TVPA), as amended at 22 U.S.C. § 7105(b)(1)(B)(ii), authorizes the Secretary of Health and Human Services to make a grant for a national communication system—the National Human Trafficking Hotline (NHTH)—to assist victims of severe forms of trafficking in persons in seeking help, receiving referrals, and reporting potential trafficking situations. The Office on Trafficking in Persons (OTIP) made an award in the form of a Cooperative Agreement to a single, competitively selected grant recipient to maintain and support operation of the NHTH throughout the United States and U.S. territories. The NHTH is a toll-free hotline, that operates 24 hours a day, every day of the year. National Human Trafficking Hotline Performance Indicators (OMB #0970-0598) is an active and approved collection of aggregate information about signalers (individuals who contact the NHTH) and from signalers regarding potential victims of a severe form of trafficking in persons and potential human trafficking situations. The information collected is reported on a monthly, semi-annual, and annual basis, and is necessary to support the monitoring of work done through the cooperative agreement, to ensure signalers receive the information and support requested, and to provide appropriate technical assistance (TA) to the grant recipient. To address performance issues and streamline internal signal processing procedures, the NHTH has audited its data collection practices and has identified indicators that are no longer in use, relevant, or otherwise necessary that can be removed to reduce the data collection and reporting burden on Hotline Advocates, the individuals employed by the grant recipient organization to operate the NHTH. This process included efforts to collapse, condense, or otherwise simplify lists of data elements for clarity. Per the Supporting Statement, this information collection does not seek to collect any information from signalers (respondents) that they would not otherwise provide to Hotline Advocates in order to seek help, receive referrals, or report potential trafficking cases. None of the proposed changes impact front-end data collection, or the questions that Hotline Advocates ask to ascertain the purpose of a signal and the signaler’s desired response (i.e. to issue a referral or make a tip). By contrast, each of the proposed changes impact only the solely-awarded grant recipient and the changes are being informed by efforts by the recipient described above. This request aims to bring the collection into alignment with the grant recipient’s back-end data collection practices (i.e. what Hotline Advocates record in their case management database to summarize the signal and actions taken in response). Each of the changes proposed seek to improve data capture and data quality.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

22 USC 7105(b)(1)(B)(ii)	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

Tribal TANF Data Report, Tribal Annual Report and Tribal TANF Reasonable Cause/Corrective Action Documentation Process

Key Information

Abstract

The Personal Responsibility and Work Opportunity Re¬conciliation Act of 1996 (PRWORA) amended the Social Security Act and created the opportunity under §412 for Federally recognized Indian Tribes to design and operate their own Temporary Assistance for Needy Families (Tribal TANF) programs. Subject to approval by the Federal government of their plans, Tribes can receive block grants from the Federal government for this purpose (Tribal grantees). Indian Tribes and Tribal organizations are defined by PRWORA as having (except for Alaska) the meaning given such terms by section 4 of the Indian Self - Determina¬tion and Educa¬tion Assistance Act (25 U.S.C. 450b). For Alaska, the non-profit arms of the Alaskan Native Corporations and the Metlakatla Indian Community, Annette Island Reserve are specified as the only entities eligible to be Tribal TANF grantees. Section 412(g) of PRWORA imposed on Tribal grantees the data collection and reporting requirements of §411. Section 411(a)(1)(A) specifies the data items to be reported. Additional data collection requirements are imposed by §407 (work participation requirements) as modified by §412(c) ('negotiated' Minimum Work Participation Requirements and Time Limits) and §411(b) (Report to Congress). The data are used to assess Tribal TANF programs to determine if Tribal grantees have met their negotiated work participation rates and to meet Congressional mandated requirements of §411(a)(1)(A) of PRWORA. The data are also used to measure impacts of Tribal TANF for research and program improvement and to provide descriptions of the populations served, which are published annually on OFA’s website and in TANF’s annual report to Congress. Pursuant to the U.S. Office of Personnel Management (OPM) Initial Guidance Regarding Executive Order Defending Women provided on January 29, 2025, OFA proposes a few minor changes to the Tribal TANF Data Report Instructions to ensure alignment with OPM guidance. We are requesting expedited approval of these minor changes.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

42 USC 612	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

Panelist Profile Data Collection

Key Information

Abstract

Data collection requests information on individual's arts experience and expertise, as well as contact information. Information collected is necessary to fulfill the National Endowment for the Arts' Congressionally-mandated obligation to ensure that panels have diverse geographic, ethnic, and artistic representation and that panelists serve no more than three consecutive years.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

20 USC 954	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

Application for a U.S. Passport

Key Information

Abstract

The Application for a U.S. Passport (Form DS-11) is used by citizens and non-citizen nationals (hereinafter, collectively referred to as "nationals") of the United States who are applying for a U.S. passport (a travel document attesting to one's identity and U.S. nationality), and who must apply in person.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

22 USC 211a	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

Evaluating Registered Apprenticeship Initiative Study

Key Information

Abstract

DOL requests clearance from OMB for a new collection associated with the Evaluating Registered Apprenticeship Initiative. The Chief Evaluation Office of the U.S. DOL commissioned the Evaluating Registered Apprenticeship Initiative study to design and conduct analyses that add to the evidence base on apprenticeship strategies and models through an evaluation of the Apprenticeship Building America (ABA) grants. ABA awarded grants in four categories: state apprenticeship building and modernization (category 1), youth apprenticeships (category 2), pre-apprenticeships (category 3), and registered apprenticeship hubs (category 4).

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

U.S. Repatriation Program Forms

Key Information

Abstract

The U.S. Repatriation Program (Program) is authorized by Section 1113 of the Social Security Act (42 U.S.C. § 1313) and the assistance provided to mentally ill repatriates found under 24 U.S.C. §§ 321 - 329. This Program also provides services for emergency repatriations which are authorized under Section 1113 and by the extension of the Executive Order (E.O.) precedent, E.O. 12656 (53 CFR 47491). Program regulations are in 45 CFR 211 & 212. The current collection includes eight forms with translations in six languages. The information collected through these forms allows the Office of Human Services Emergency Preparedness and Response (OHSEPR) to fulfill its statutory responsibilities to provide temporary assistance to repatriates. The Program also provides training and technical assistance to states and territories for routine and emergency repatriation. Additionally, OHSEPR provides funding to states for emergency repatriation planning, training, and exercises. The Administration for Children and Families (ACF) has updated two of the fourteen forms (RR-01 Emergency Repatriation Eligibility Application and RR-05 – Repatriation Repayment and Privacy Agreement) to comply with Executive Order 14168, Defending Women from Gender Ideology Extremism and Restoring Biological Truth to the Federal Government (Defending Women). The remaining twelve forms are already in compliance and do not require changes.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

24 USC 321-329	View Law

42 USC 1313	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

Workforce Recruitment Program (WRP)

Key Information

Abstract

Managed by the U.S. Department of Labor in collaboration with the U.S. Department of Defense, the Workforce Recruitment Program is the premier resource of qualified college students and recent graduates with disabilities, from a large selection of colleges and universities nationwide. Candidates represent a wide variety of academic majors and career interests including business, law, and Science, Technology, Engineering and Mathematics. In addition, 10% of the database is comprised of veterans with disabilities.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

Pub.L. 115 - 245 79	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

Pathway Home Grant Program Evaluation

Key Information

Abstract

The Chief Evaluation Office (CEO) in the U.S. Department of Labor (DOL) is undertaking the Pathway Home Grant Program Evaluation. The overall aim of the evaluation is to determine whether the Pathway Home grant programs improve employment and justice outcomes and workforce readiness for adults by expanding the availability of services to individuals in the justice system, both before and after release. The Evaluation of the Pathway Home Grant Program (Pathway Home Evaluation) offers a unique opportunity to build knowledge about the implementation and effectiveness of these programs. CEO contracted with Mathematica and its subcontractor, Social Policy Research Associates, to conduct an implementation and impact study. This information collection request seeks Office of Management and Budget (OMB) clearance for two new data collection instruments.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

Trafficking Victim Assistance Program (TVAP) Data

Key Information

Abstract

The Trafficking Victims Protection Act of 2000 (TVPA), as amended, authorizes the Secretary of Health and Human Services (HHS) to expand benefits and services to foreign nationals in the United States who are victims of severe forms of trafficking in persons. Section 107(b)(1)(B)(i) of the TVPA of 2000, as amended, (22 U.S.C. § 7105(b)(1)(B)(i)) authorizes the Secretary of HHS to expand non-entitlement benefits and services to victims of severe forms of trafficking in persons in the United States and their family members with derivative T visas. It further states that such benefits and services “may include services to assist potential victims of trafficking in achieving certification and to assist minor dependent children of victims of severe forms of trafficking in persons or potential victims of trafficking.” Acting under a delegation of authority from the Secretary of HHS, the Administration for Children and Families (ACF), Office on Trafficking in Persons (OTIP) funds time-limited comprehensive case management services to foreign national adult confirmed and potential victims of a severe form of human trafficking, as defined by the TVPA of 2000, as amended, who are seeking or have received HHS certification. The Trafficking Victim Assistance Program (TVAP) must also establish local regional presence to coordinate project activities and direct services. Case management services must be provided to qualified persons directly by full-time case managers that are staffed by the prime recipient and may also be provided through a network of per capita service providers, which provide direct services and community referrals. TVAP is currently inclusive of three distinct award programs: the Trafficking Victim Assistance Program , Aspire: Child Trafficking Victim Assistance Demonstration Program, and Lighthouse: Services, Outreach, and Awareness for Labor Trafficking (Lighthouse) Demonstration Program. The performance indicators and data collection instruments under OMB #0970-0467 apply to all three TVAP programs. The primary objective of OTIP’s victim assistance programs, including TVAP, is to provide comprehensive, culturally and linguistically responsive case management to individuals who have experienced a severe form of trafficking in persons. Current TVAP recipients have reported concerns over competing requirements and priorities under their awards, which made it difficult to balance direct service provision against training activities for community-based providers and members of the general public. Grant recipients have also cited concerns over the lack of foundational knowledge within their communities as to what constitutes human trafficking victimization, which has impacted their ability to identify potential victims and connect those individuals with services. Beginning in FY 2024, so as to reduce reporting burden on recipients and strengthen public awareness within the geographic service areas where recipients implement their programs, training is no longer required or an allowable activity under TVAP. These updated requirements pertaining to allowable and required programmatic activities were made public through the most recent NOFOs and grant award processes and are already in effect. As such, we are requesting to remove the training indicators from OMB #0970-0467 and to make a minor update to the Outreach form for recipients to report on their public awareness activities. Additionally, based on information about clients served during FY 2022, we are requesting an update to the Client Case Closure form. ACF has implemented changes to update gender collected data to denote sex as a biological variable in current approved information collection requests to comply with recent presidential directives.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

22 USC 7105(b)(1)(B)	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

The Evaluation of the Pathway Home Grant Program (Pathway Home Evaluation)

Key Information

Abstract

The Chief Evaluation Office (CEO) in the U.S. Department of Labor (DOL) has commissioned an evaluation of the Pathway Home grant program. The Evaluation of the Pathway Home Grant Program (Pathway Home Evaluation) offers a unique opportunity to build knowledge about the implementation and effectiveness of these programs.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

Pub.L. 113 - 128 169	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

Formative Data Collections for DOL Research

Key Information

Abstract

The Chief Evaluation Office (CEO) of DOL seeks approval of this generic clearance to allow DOL to conduct a variety of formative data collections. Under this generic clearance, DOL would engage in a variety of formative data collections with researchers, practitioners, technical assistance providers, service providers and potential participants throughout the field to fulfill the following goals: (1) inform the development of DOL research, (2) maintain a research agenda that is rigorous and relevant, (3) ensure that research products are as current as possible and (4) inform the provision of technical assistance. DOL envisions using a variety of techniques including semi-structured discussions, focus groups, surveys, and telephone or in-person interviews in order to reach these goals. The findings from this data collection can inform and support future and current research but that are not highly systematic or intended to be statistically representative or otherwise generalizable.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

29 USC 3224(a)	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

2024 Residential Energy Consumption Survey (RECS)

Key Information

Abstract

The Residential Energy Consumption Survey (RECS) is a quadrennial survey that collects information on energy consumption and household characteristics that relate to energy consumption. Energy suppliers report energy consumption for households in the sample. The information obtained by RECS is used to produce estimates of energy characteristics, consumption, and expenditures in U.S. households.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

15 USC 790a	View Law

15 USC 772	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

Supporting Statement to USCCR’s PRA Information Clearance Request

Key Information

Abstract

Please find our attached Supporting Statement to USCCR’s PRA Information Clearance Request. Please let me know if you need us to clarify, supplement, or otherwise modify our responses. We received no public comments. Our 30-day Notice was submitted today. Our related SORN was published in the FR here: https://www.federalregister.gov/documents/2023/03/21/2023-05709/privacy-act-of-1974-system-of-records. I attached the 30-day Notice as a Supplemental document within this system.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

42 USC 1975a	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

Eligibility Data Form: Uniformed Services Employment and Reemployment Rights Act and Veterans' Preference

Key Information

Abstract

Title 38 U.S.C. Section 4322 of USERRA authorizes the Secretary of Labor (through the Veterans' Employment and Training Service) to investigate claims by individuals who believe their USERRA rights have been violated. The information is used to determine eligibility of veterans complaints to reemployment rights they are seeking as well as to state alleged violations by employers of the pertinent statutes and request assistance in obtaining appropriate reemployment benefits. The Veterans Employment Opportunities Act (VEOA) of 1998, P.L. 105-339, 112 Stat. 3182, contained in Title 5 U.S.C. § 3330a-3330(b), provides assistance to preference eligible individuals who believe their rights under the veterans' preference (VP) laws and the Veterans Benefit Improvement Act of 2008 (Public Law No: 110-389) have been violated. Section 3 of the VEOA provides the Secretary of Labor similar authority to investigate complaints brought by preference eligibles. The collection instrument completed by claimants contains the information required and needed for the Department to determine initial eligibility of the claimant.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

38 USC 4301	View Law

Pub.L. 110 - 389 312	View Law

5 USC 3330a	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

Veterans’ Employment and Training Service Competitive Grant Programs Reporting

Key Information

Abstract

This request pertains the collection of performance data for the discretionary grants authorized under chapter 20 of title 38 of the United States Code. The collection of information is necessary for the proper oversight of discretionary grant funds administered by the Department of Labor’s Veterans’ Employment and Training Service (VETS) as required by law and regulation. These discretionary grants fund over 160 homeless veterans’ reintegration projects that serve over 17,000 veterans experiencing homelessness, veterans at-risk of homelessness, and incarcerated veterans annually. The discretionary grant funds are also used to fund over 30 Stand Down events annually.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

38 USC 2021(b)	View Law

38 USC 2021A(c)	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

Consumer Expenditure Surveys: Quarterly Interview and Diary

Key Information

Abstract

The Consumer Expenditure Surveys are used to gather information on expenditures, income, and other related subjects. These data are used to periodically update the national Consumer Price Index. In addition, the data are used by a variety of researchers in academia, government agencies, and the private sector. The data are collected from a national probability sample of households designed to represent the total civilian non-institutional population.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

13 USC 8b	View Law

29 USC 2	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

Census of Fatal Occupational Injuries

Key Information

Abstract

The Census of Fatal Occupational Injuries provides policymakers and the public with comprehensive, verifiable, and timely measures of fatal work injuries. Data are compiled from various sources including Federal, State, and local governments, the private sector and individuals and include information on how the incident occurred as well as various characteristics of the employers and the deceased worker. This information is used for surveillance of fatal work injuries and for developing prevention strategies.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

Pub.L. 91 - 596 24	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

Cognitive and Psychological Research

Key Information

Abstract

The Bureau of Labor Statistics' Behavioral Science Research Center (BSRC) conducts psychological research focusing on the design and execution of the data collection process in order to improve the quality of data collected by the Bureau. The BSRC conducts research aimed at improving data collection quality by assessing questionnaire/form management and administration, as well as issues which relate to interviewer training and interaction with respondents in the interview process. BSRC staff work closely with economists and/or program specialists responsible for defining the concepts to be measured by the Bureau of Labor Statistics' collection programs. The proposed laboratory research will be conducted from Fiscal Year (FY) 2024 through FY 2027 to enhance data quality in the Bureau of Labor Statistics' surveys. Improvements will be made by examining psychological and cognitive aspects of BLS's data collection procedures, including questionnaire design, interviewing procedures, collection modalities, and administrative technology.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

29 USC 2	View Law

29 USC 1	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

Survey of Occupational Injuries and Illnesses

Key Information

Abstract

The Survey of Occupational Injuries and Illnesses is the primary indicator of the Nation's progress in providing every working man and woman safe and healthful working conditions. The survey measures the overall rate of work injuries and illnesses by industry. Survey data are also used to evaluate the effectiveness of Federal and State programs and to prioritize scarce resources. Respondents include employers who maintain Occupational Safety and Health Administration (OSHA) records in accordance with the Occupational Safety and Health Act and employers who are normally exempt from OSHA recordkeeping. Each year a sample of exempt employers is required to keep records and participate in the survey.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

Pub.L. 91 - 596 24(a)	View Law

Pub.L. 107 - 347 Title 5	View Law

Presidential Action:

Reference Number:

Omb Control Number:

Agency:

Received:

Concluded:

Action:

Request Type:

[NCBDDD] Focus Groups Among Adults with or Caring for Individuals with Congenital Heart Defects (CHD), Muscular Dystrophy (MD), and Spina Bifida (SB).

Key Information

Abstract

The purpose of this project is to conduct focus groups among adults with or caring for individuals with congenital heart defects (CHD), muscular dystrophy (MD), and spina bifida (SB) to obtain firsthand perspectives on the types of care individuals receive with a special focus on: receipt of and access to medical care and barriers and facilitators to accessing, receiving, or reengaging care; the journey to diagnosis; and the transition period from pediatric to adult care (for persons diagnosed during childhood). This change request includes minor modifications to the screener and the discussion guide. The burden is not affected.

Federal Register Notices

60-Day FRN	View Notice
30-Day FRN	View Notice

Authorizing Statutes

42 USC 241	View Law

Presidential Action: